31- Living with Alzheimer's

Brought to you by volume ICU research life can bring many difficult situations, domestic violence, addictions, poverty and even sexual by your loved ones welcome, Amy, and Q cell to cell after going to matter what type or suffering chronically and trying to use testimony to that effect and inviting professional and inspirational speakers to help and suggestions when you stop worrying about the big things because you believe God will provide the tent to focus more on becoming better day by day.

Still being kind has become very important to me. I have learned that is important to be kind, especially when the opposite is expected. God said love each other as I love you and I believe Jessica to lay the simple as being kind to all of God's creation his people, animals, nature, land and sea, and I believe that we can all live in harmony with God in my life. I take care of myself and focus another's. Rather than focusing on myself taking care fathers neglecting to take care of myself. Most of the time. Most the time.

Love unconditional love and understanding resolve all issues. After all, love is the answer to every problem.

But what if the problem is something we don't understand, and a solution seems deemed for failure and possible or it has no end, as in a family member that doesn't respond. Normally because of the noncurable chronic medical condition called Alzheimer's, among other conditions, such as TBI, that when kindness is mostly needed for me. Understanding helps me to be kind sick today I want to talk more about Alzheimer's disease had a diagnosis treated and how to help people living with it and their families at their suffering. Watching the dad or mom become more helpless in front of them and today's guest is Dr. one up anything. Who is going to help us understand more about the chronic condition, Alzheimer's disease and among others. Because these are diseases that are chronic. They have no end. Dr. Juana is a trained clinical psychologist working with patients with memory loss at the neuroscience clinic in Miami that typically thank you for being on the show. Thank you so much for having me. It is really a privilege. Thank you Diggity can you tell us what is Alzheimer's disease for those of us that are not familiar with it, all Flemish disease is a progressive, irreversible feces of the brain that destroys memory and thinking skills, and eventually carries on to daily activity until you need full-time care is I have experienced it both ways. As a professional and as the daughter of a patient with Alzheimer's. So like it, it can really be very difficult and very stressful for the family and this is I believe that somebody suffering with Alzheimer's needs a full-time caregiver. Yes, they're not able to do for themselves and also heard of dementia, and I know I get a little confused the two. The difference between Alzheimer's and dementia. I only know that the booth progresses.

Dementia is an umbrella term to describe loss of memory loss of thinking behavioral behavioral problems or issues but it's an umbrella term and there are many dimensions there's over 200 types and you can have the mixture can have Alzheimer's and aggressive vascular dementia. You can have a combination of dimensions. It is not only specific. I have one and that's it.

You have one in you will get another or you could get another night you will love others and come with the same symptoms right, such as memory loss and ability to take care of themselves. Maybe cognitive impairment correct, but one. One is gratis Alzheimer's is gradual in vascular dementia is more progressive. Neither of them have the chair correct so far.

So for regulators. Hopefully with research we should and when you describe someone to be mild cognitive to have mild cognitive impairment. Is it possible for them to have mild cognitive impairment absent of dementia or Alzheimer's disease because it mild impairment is is like a borderline condition between what is normal in the aging process and what could eventually become a dementia worn Alzheimer's. Okay so I'm going to be permanent is the first stage in which patients the coverall time or maybe are beginning to do half so you presents with mild symptoms of the same symptoms of the dementia, but in the much much love lower-level that's correct so you are the daughter of the patient dementia current and could just just plain paint a picture for us of the kind of things that we could expect in a patient with dementia and what's the best way to to handle this because obviously it's a lifetime commitment is not something you just cannot get over survive and start over. This is something that's forever you don't survive it because the patient does eventually passed away, and for us it was my mother and my sister who took care of my father and they we had eventually had hospice for him and it's very stressful on the family because you know that no matter what you do and no matter where you go when no matter what tester what medication there is it. It's progressive and and there is no resolution to the problem cognitive impairment that would ease that they have memory problems as well with zero point in time that your father did not know who you were.

Yes or his caretakers. Yes, a when it first started for him. He would say to us, he would say to me. I know that by the way that you're behaving you're not seeing what I'm seeing Casey confirm their idea even though it's not reality or do you go along. And you know when upset, then what's the correct thing to do in this case, I wish I would tell my father is I don't see it.

I don't see what you see but I understand that you're seeing something there.

There's something there for you, but I believe that you see.

But I believe that use okay so that is the affirmation because it is too frustrating to phone no. I don't see it, or no, I don't believe you, and you just can add to the to the stress of them not knowing what's really going on and he eventually forgot who I actually hate he didn't really totally forget because when you would ask asking for my he would say my heart and my heart can be difficult. I've never had anyone in my life that had been and shall II just can't imagine what it's like for the family is a very very stressful and very stressful family. This you will even argue between us of what would be the correct method of treatment or what's the next step in. There's really nothing that you can really do. His mother also had also honestly believe his mother had the what is called the familial Alzheimer's which she got when she was young, so there's a genetic component. There's there's two types. There's a sporadic online learning which is correct.

While which is the 95% of Alzheimer's, updated, and 5% is genetic so out of the chromosomes chromosome 114, 19 and 21 are the ones that carry the. The allele for the Alzheimer's and since it's linked chromosome 21. Most people with down syndrome.

Eventually get Alzheimer's wall that that's incredible and is there a way to find out if you have the predisposition to have Alzheimer's and would even make a difference to know ahead of time. I think it would make a difference because you at least can get ready for. You may want to make a video a history of your life explaining your childhood, your schools, your friends what happened to you eventually forget this is no way of communicating so as a record of what happened to review new this is going to happen to you can keep track of what happened to your life and through your life rather than socialism or the like.

For example, to do when I get it right so you're willing to predisposition right so you can test your genetic predisposition, but it's not necessarily your will get.disease correctly carries the genes even if you go to the gym. Note gets sick from Alzheimer's ever cellulitis that worried for nothing. You are just your loving or if you want to know everything around you then maybe you should check it out more. There's a lot of companies that do it right now right. For example, you can do the genetic testing 323 and me the cheapest way to figure out whether you carry the gene will have the heredity. Other companies of the heredity, forget your doctors office is NAD could be a piece of mind. If you find out don't carry the gene drive idea, your family find out if there's a possibility considering think about children whether he passed down alternative.

Personally I would want to know but usually like to read your choices. Not like you got all you need to go check it out will show them the right one. Hope okay well supposing this supposing one has the gene for Alzheimer's and the other parent doesn't. What are the chances of the child being born with 50-50 not always what all this, much less okay, I don't know. The mother love it you would have to do upon it square and figure out what gene is where in the parent and calculating the sporadic okay but then please tell me it's a recessive gene, significant answers are insignificant, 90, 95%.

So would be a 5% chance of something insignificant counseling so that the recessive gene, something that doesn't usually come out it's not dominant it's not what you would normally see it, that's gonna get to know because it is something that you have to live with for the rest of your life and from what I'm hearing is that the best thing you can do is to be there for the person he supported and gifted listener. I think there's nothing he can do for someone better than to listen to and to show that you care anything that you may not agree with them that they know you're okay with what they believe was with with with that they think that also think it's important sites, taking care the person who has Alzheimer's caretakers. They carry out a big burden and it's important for the caretakers to take care of themselves. Yes what result were you can go to a support group right there is support root or support groups with those around you. And there's also support group through the Alzheimer's foundation variable only. We return will see what things we can do because it's much harder for someone that lead living with a chronic condition is much harder for them because it's never over for them. I feel that it's harder for the family than it is for the patient because right family is that over right because I don't think the patient really knows what is going on right right in the beginning for depression is very frustrating not to remember things.

But when he gets more and more demented than a few thousand, or she doesn't really realize what's going on but in the beginning stages is really frustrated with the bridge and sometimes even leads to depression, aggressive behavior in other situations.

Now we continue with daily gobble in the tool on the BU and thanks for this team is listening to the cure to host a Mikado.

If this is your first time today we have Dr. and we are talking about how to live with Alzheimer's disease as well. Chronic conditions.I we spoke about Alzheimer's that is not very common. The question for you that this is is it is it doesn't only show up in old age or edit show up in younger adults as well.

It shows up as early as in the 30s while chopped as early as in the 30s so it's not a disease of an old person only owe somebody's calling. Yes, I am experiencing. My dad was diagnosed years ago he started by studying and crying. Very quickly and clearly very difficult for dad.

He called himself useless time, even when he he he is not even aware that this didn't happen for the family is calling one out with Dr. Perry with the best he would be best. Asking this because she understands exactly where you're coming from. She lifted I think that your correct. It's worse for the family. I suggested a support group work counselor at this point would be ideal for you is, no matter what you do you know it's not going to be you not feel that you succeeded and I think that is the most trying part of being a caregiver helpless feeling helpless feeling something helpless that I could do a lot when he something you will laugh, or even if I forget I'll make a joke about it but we try to laugh a lot and that really help like music. Yet one you really like it. Special movie, like for example hundred foot journey. He did not even help character walking out of the old believe that he really liked the connecting really like that music slightly hard like that. He remembers so he sees it and remembers it because it's stored in his long-term memory.

Remember that he can remember that while the results unless you start forgetting recent events in recent things. The old-timer routes like long-term memory.

Long-term memory space in talk in the beginning, while difficult, Inc. please stay strong well give you some suggestions because I know that you're doing what's best for their father father and I believe that you doing what's best for him helping him feel comfortable doing the things that you will enjoy such as listening to music or watching movies and things like that but also understand that it's got to be difficult for you and I believe that it's time all is important also to take time for yourself. Make sure you take time to listen to music, to meditate. Maybe exercise. There's many different things that you can do a support group would be helpful and don't be afraid to ask for help, it's okay were here for a tether sometimes will take too much on our own. We can feel overwhelmed and still try to set yourself up to where you know you can feel God and I do not feel overwhelmed by making sure you take time for yourself as well. I think that would place so we are talking about Alzheimer's being a hereditary disease and the caller that just called and she seems like a very sweet Alzheimer's person.

I don't know about Alzheimer's but I know about TBI, traumatic brain injury, and I know that that can come with a lot of questions and are and and I don't know if that's the same for Alzheimer's as well have anger issues, education, easily agitated very easily educated and maybe they don't understand you so that I have any choice but to get agitated. Sometimes it's the only way they know how to express themselves. So what's the best way to deal with high view.

I will endeavor to write down different don't provide will you try to calm them down middle there.

And sometimes, in such an agitated state that you don't come to know right away. You don't calm them down right away and it's okay she's given her time and just make sure they're safe right make sure that they're safe. Okay, I'm just guessing, but I could tell you about TBI.

Definitely I can tell you about. And so besides the outburst of anger and mild cognitive impairment or that progresses where they forget everything and then not being able to take care of themselves. I think the board is mentioned, depression, suicide, something we have to be concerned about an Alzheimer's patient.

I keep a close watch because they still have enough when they're depressed he still have enough memory of themselves to to be able to commit suicide so they realize are going through this with a no. They may have Alzheimer's because of a previous testing done or something like this thinking very welcome to about can they get to the point where they just walk out the door of the house and maybe get run across is getting hit by a car very, the only hapless observe an Alzheimer's person knows that like you fit the child] yes, for some so you know what the caretakers deserve an award. They certainly do. That's amazing. They really do. God bless them that that's anything I had well horse and I had our own our own challenges we never had an Alzheimer's family member that we came into another chronic condition that a lifetime commitment and this is normally cost by it by accident or by injury.

It's the traumatic brain injury. It happened to my daughter on Valentines 2016 and God. She survived. She's alive, and most of what you can see the physical injuries are no longer there. So what's she's left with is what you're not able to see how affected I know that you can get medication for depression by sample. Can you get medication for traumatic brain injury and how effective is there is medication. I believe that there are basically treated with antidepressants, mood stabilizers okay okay mood or right and there is also some of the Grisham book are probably not approved specifically for promoting brain injury but helps good effect on people with agitation due to traumatic brain injury, some medication like no back some of the physical soldier Dr. if you have doctors all letting you do this you have taste like ours where your adult daughter. He can't force them to do anything besides their well what it's there's denial. She doesn't believe there's something wrong with, which was difficult to get her disabilities because she thinks she's okay to go through the courts and get a got a guardian for her or surrogate for that was an option. I believe it's an option with traumatic brain injury because they have issues that in the long run.

They may not be able to do their finances or take care of themselves and they would need somebody to do it. So you would have to legally get custody of the adult yes because they're all great. I don't have to completely take everything from her like saying that you can't do this or you can't do that. I'm your guardian. You can guardian and then just sort of guide her through therapy approach things force you know how you react to somebody with fourth 2000 and now Alarcon. I know this is going with with her daughter has to convince her that living with us. It's what she wants you never, never be like he wanted getting what she wants.

In the meantime have to support her with what she wants. I want to be her friend or enemy turned to me when she's in trouble. She want turned to me for help and it doesn't matter how I see it, her perception is what counts is true, but what happens to this amount. It doesn't matter how old you are, you still sometimes see your parents are authoritative for me instance with my mom. I don't listen to her all the time. No, as you all the time. Yeah, I really want to talk more about this because I I'm sure my daughter is not the only one with the traumatic brain injury.

A lot of accidents happen with these things also place for people with Alzheimer's. Because the storm start will be able to give them so forgot. Bro that's what needs to happen upon the garden of sorts, or deem the person incapable to the courts is here for an Alzheimer's patient because are not aware they get to the point where they're not even aware what's going on are aware of themselves. Whereas I patient, traumatic brain injury patient are completely you know that we are learning to drive their alert and they know what's going on have a healthy brain. The brain was healthy.

We were injured before Alzheimer's brain is not healthy brain. It's okay that in. That's the difference you can even through the injury itself to bringing great plasticity around the injury and get a lot of of the function back right nice.

So doesn't mean that any time. It's not just one month is a one month thing. It happens through time so she can gain a lot of her functions back doesn't necessarily mean so far all the physical functions and help. It doesn't have to be progresses known for her nice but for this opinion is listening to the care with your hosting Mikado would live every Friday at 2 PM Eastern radio.com it's can be a podcast later on and you can always ask Alexa deeply will continue talking about this is break is the answer. God's work reveals from a very sincere and honest position in Cabo's life warrior didn't give up and achieve the dream of her life. You can get to know more about her at her story on www.godisthekeyword.com or buying her book on Amazon.com. If you suffer from persistent depression called neurosciences medical clinic to schedule a free consultation for new, effective FDA approved treatments such as intranasal ketamine or Norstar TMS.

No medication treatment neurosciences medical clinic call now 786-600-7005 neurosciences medical clinic 786 600-700-5786 600-7005. Now we continue with daily gobble in the 218 80 I share with you have relied every Friday at the number of call in number is 305541350 lines are open if you call 305-541-2350 with talking about Alzheimer's and I would like to continue with Dr. Pellegrin so we talked about some of the symptoms of falls, but maybe we can go a little bit deeper into the stages and what symptoms go into each stage. Dr. stage one is before you usually before your diagnosed last about 2 to 4 years and it goes from short-term memory loss, difficulty in concentration, poor judgment, hesitancy in doing things that came, usually to you or easily to you. Sometimes problems with finding the expression you want to or word you want to say some perception changes may occur in personality perceptible changes in the anxiety anxiety and what's going to happen with with you and difficulty in decision-making.

The second stage is usually from last from 2 to 10 years and its following diagnosis and its repeating statements real difficulty remembering friends and friends, family, and their names, restlessness, fear of getting into the bathtub.

Perceptual motor problems, increased difficulty in organizing thoughts problems in writing, reading, and expressing yourself with numbers and more and more difficult. Locating the right words, suspiciousness and irritability hearing and seeing things that are not there.

Stage III is considered the terminal phase doesn't recognize the self unable to take care of himself, difficulty swallowing, sleep longer and more fitfully bizarre or disturbed behavior, such as constant crying, hitting, biting, screaming and grunting noises. Loss of control of her bladder and bowel abusive, angry, aggressive, demanding behavior, bizarre sexual behavior. So those are the three stages of Alzheimer's that really very difficult now that entailed so much.

I love that person that called Dan because she seemed to have stayed positive despite the fact that her father has Alzheimer's disease and that's that's a lot to deal with. Is there any how is it treated you wanted to say that the number for the Alzheimer's Association. For example, is 1-800-272-3900 or four people.the looking for additional help for the caregivers. For example, there is a national caregiving foundation for the people that they care of the of the patients would also 1-800-930-1357 yes you are right, and because the issue is with all due symptoms. They can be due to many different things, not only for Alzheimer's. So your question to us forests. How was your diagnosed is very important you see any behavior. I guess that's not normal. You can want to look into it that for the Alzheimer's. Person, it's a very sad prognosis actually and so how do we keep this patient comfortable.

What kind of treatment is there available. What's the efficacy of this treatment. How does it work. What does it do for them first diagnosis there there would there are many ways of diagnosing, but there's so you would do is psychological evaluation you would do scans and neurological evaluations, but to totally determine if the brain has amyloid plaque or the tile tangles you would have to do a biopsy after well before we get there something else I think there is a 90% and of of knowing what it is through the scans and I know you really get to the autopsy at the end it there are other things but the most diagnosis is the biopsy that's correct, but there is other diagnosis methods that we can use to help diagnose the condition while the patient has itself starting with memory tests. As you probably do a lot of memory. Does the English the different level mild symptoms that some guy that I what I was talking about is okay so you have also know the person same symptoms that you keep that person comfortable. What is what I wanted to go little bit more into the diagnosis because there is the availability of a pets gun to determine whether these deposit the formula are available to go to the doctor and was just recently unless you go to a clinical research study in which it will be more clear how to do it than the doctors there were no more, but of the reason he wasn't even available to anybody to go to a pets, nowadays there is a couple of different isotopes that can be used. One is to be more expensive or more specific for Alzheimer's, but to me we're not really sure whether the Alzheimer's due to the deposits of Army lights.

This is doing the questions I might be deposits of dowel though what you call it peptides though… So those things can be found in a pets, and after the can be done.

A lumbar puncture, diagnose it while you can get to the source. You can figure out the cure right. In the meantime Heidi you to The symptom medications like the pill or Namenda, Effexor, and I believe there is another one that treats the symptoms but doesn't cure the illness right but doesn't at least help them with the inevitability of their aggression biting things. He treats the symptoms of this medication Street ride, but it doesn't really help. So now there is a lot of the pharmaceutical companies the fluke for the treatment of falls, and the first one of these going to find a belittlement one stalks from dollar one will all about then 15 pharmaceutical companies that do research studies on different molecules and some of them unfortunately found out that their molecule didn't work. Anyone stop the studies we we been participating via studies and the company's gifts to assert them stage and then discover there is no effect and discontinue it. But there is another from super companies, other centers that work on it and I'm pretty confident the phone with the help of FDI because it is starting to help to promote foster approval for certain drugs that prove the cup from benefit replacement. Also, so the moment that somebody finds it. That's going to help foxtrot approval is going to go to the pharmacist foster than the normal process of fife use lets you end up help because they do have expedited approval for for certain forces a more severe, more so.

Important conditions more severe conditions. Yes, I I would assume that's very important that you ever come across. I know that it's my belief that whether it's an infection and/or condition and/or an element involves get smart. I think they're outsmarting our medications so it constantly having to come up with the medications constantly having to get smarter and that you come across something close to that.

Something that will be very effective in a couple of old studies that we participated.

Actually, the patients were feeling very very well better so I'm pretty confident well, think about the simple for the shelter this community safe which ones can't give us the medication. Medication name, but there is companies look to me are very close to finding something I think they also have stem cell research. That's another issue of their people working your stem cell research and long Chevron is a company here, sponsor here in South Florida which we we should be very proud of that is working on on stencil research for Alzheimer's nice because you know I'm a really big believer that I believe that God gave us everything that we needed right I mean even if you sent up a child we just we in nature.

I think we had everything that we need and it's just a matter of time before we discover that you believe I like the looks I don't think it's too far away because there's so much promise with the current pharmaceutical products now right through the problem is that we really don't know what is the cost of the Alzheimer's once they know the cause going to find a cure. Foster because the concepts there was due to the deposits of farming loads blocks but then we have other theories recently about here. The say that is not so we had to have a couple of drugs that are to reduce the Miller deposits but then they should improve. So basically it's a lot of you live and learn. Research research yes maybe it didn't work because the damage was already done. Maybe see that's another issue right.

That's why they started inviting patients with earlier stage of the studies, the so-called mild cognitive impairment, so you don't have a lot of damage to the brain earlier treatment helps them reverse it all again. Reverse it is possible without the yes it can reverse because of its early enough.

We spoke a little bit earlier but the plasticity of the brain.

The brain learns how to cure itself through plasticity creating new connections and if there is enough healthy brain left there can be some stopping the illness from progressing or slowing down there in the perfect okay perfect. I get to know you that that's anything you know, because it's it's really hard. I can imagine being that person that has to deal with that with my daughter the different situation, but the symptoms are very similar and this one will not take medication will not go to therapy to become physical. But what I did for myself. To be able to handle it better and learn how to see wise words and use psychology. Now that I use prayer really I depend on God nothing else but that because I mean you could say they can say all think positive. All negative. It's not always that easy with it right. If they don't deal with the issues of the anger that the set action and helplessness that you feel through somebody that has an illness that is progressing and you know that personal care like my daughter awful feeling as a mother feeling like help her.

The only way I can help her is to be of a friend to her and to pay for that very difficult. I don't know you tell me the doctor does a dramatic brain injury person I know that an autonomous patient does not does not come to terms and realizes if something wrong with him right about a dramatic brain injury patients. They eventually realize they need help. So I think they can okay but the Alzheimer's person can know with the traumatic brain injury.

It all depends on how much damage was done to the brain and what part of the brain. Okay so with Alzheimer's. It's the whole brain that that's the difference what part of the brain was damaged is is key to to helping her and how much of the brain was damaged that that would be important and well guys, it's been really wonderful talking to you guys and wonderful. It's hard to believe me, again the end of this thank you guys for listening.

Thank you for your questions. Thank you Dr. for being on the show. For more information on Dr. pedigree useful numbers that Boris mentioned earlier, Alzheimer's support can be found on Amy.com hundred guests.

This has been the host any capital. Thanks for listening to my website. Any.com for previous shelves. Love is the answer. God is the cure reveals from a very sincere and honest position. Amy Carbo's life, a warrior who didn't give up and achieve the dream of her life. You can get to know more about her at her story on www.godisthekeyword.com buying her book on Amazon.com.

If you suffer from persistent depression called neurosciences medical clinic to schedule a free consultation for new, effective FDA approved treatment such as intranasal ketamine or Norstar TMS. No medication treatment neurosciences medical clinic call now 786-600-7005 neurosciences medical clinic 786 600-700-5786 600-7005 with Amy Kabul was brought to you by IM ICU research 786-310-7477 or www.God's word.com. Tune in every Friday at 2 PM with Amy Carbo right here on 880