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40- Living with Chronic Pain

The Cure / Aimee Cabo
The Cross Radio
September 8, 2019 2:00 pm

40- Living with Chronic Pain

The Cure / Aimee Cabo

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September 8, 2019 2:00 pm

On today's Saturday Edition show, Aimee talks with Dr. Nikolov and guest Monica Reents about the challenges of living with chronic pain and how that affects everyday life.

THE CURE Live streamed podcast is hosted by Aimee Cabo and offers a platform of hope to anyone who has experienced domestic violence, abuse, mental illness, any trauma or is experiencing problems now in their lives. It's a place to find comfort, knowledge, strategies, answers, hope and love while healing the wounds and 'affirming' that you are not alone.  

Join Aimee and her professional guests on  The Cure with Aimee Cabo podcast    every Saturday at 1 PM EST   as it is recorded during the live radio show.

You can find information about the show and past guests by visiting the  RADIO SHOW PAGE.

You can also view the weekly  Video podcasts  on Apple Podcasts.  

Aimee hopes that anyone who has suffered abuse of any kind, or walked a moment in similar shoes, will find inspiration in these pages, and hope that love and truth will ultimately prevail. Please subscribe and share this podcast.
 
HOSTS:

Aimee Cabo Nikolov is a Cuban American who has lived most of her life in Miami. After many years of healing, finding love, raising a family and evolving her relationship with God, Aimee's true grit and courage led her to pen an honest, thought-provoking memoir. Years of abuse became overshadowed with years of happiness and unconditional love. Now Aimee is the president of IMIC Research, a medical research company, a speaker, radio host and focused on helping others. You can read more about Aimee by  visiting her website.
 
Dr. Boris Nikolov is the CEO of Neuroscience Clinic. You can read more about Dr. Nikolov and the work he is doing by  visiting his website.

GUEST:

Monica Reents is a poet, writer, wife, and mother living with chronic pain due to syringomyelia, syringobulbia, Chiari malformation, and fibromyalgia. Her blog, My Chronic Happiness is where she shares what it is like to live within the realm of chronic illness, sharing stories of her life, as well as, my journey into becoming an author. I am also writing a series of articles about syringomyelia and my life with this disease. You can read more about Monica on her website at https://mychronichappiness.com

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With a makeable life can bring many difficult situations domestic violence addictions, poverty and even sexual abuse by your loved ones welcome Amy, and Q any L care when I am not the kind that Dr. Morrison got up with my partner at work is suffering now for the human spirit will sent by carriage to keep moving forward despite any obstacle with the help of God and each other.

We do provide testimonials to let people know that they're not alone in this shell. Testimonials started with me having been a survivor from child to trauma well into young adulthood. We also have professionals in the medical field, inspirational speakers are willing to help and get valuable information. Because education is key and transparency is needed, and also I believe we can help each other for me. My feeling came from God that other forms of healing percent Tesla two 771 seven comes in many forms, from physical to mental even both. Some of us have suffered and some of us still suffer but like detail. If you have chronic pain T steel feel God's healing touch enter today we have a special guest Monica rents. Monica is a strong lady living with save Angel make Maya and I think that right St. John mail yeah a very painful disease. I've never heard of it since 2011. I believe it's a rare sign-up involving the nerves. The pain she just despite the pain she decided to return to her love of writing and plenty, and even published several points in supplying illness that has stopped her from working. I love something, she sat I don't feel helpless. I have many abilities aging with passion along with a determination to make my love life long dream a reality.

Monica is the founder of Micronic happiness.com Monica, welcome to the show. Can you tell a little bit about what is it that you go through what are your daily struggles with your chronic illness. Thank you for having me and I thrilled to be here. You know every day different very never a way to forecast what each day at every 10 days I wake up I can barely walk and moving it very difficult.

After laying in bed all night. The crawler focuses still there in 10. So there are certain things that are identical, lower and you know everything, curled up, though there are days where you are in a very determined person and I enjoy a being productive and some days being productive is getting dressed. Notice brushing my teeth in my face you know just doing the normal morning routine and I may need in our work to suggest just relax because my body has already used so much energy just doing nothing. I try to spend most my time in my office writing is a good distraction for me it's simple saying that all of us take for granted someone credible. You can still find happiness despite chronic illness despite constantly going to pain its it's amazing that you can to help others. I don't know much about the condition that I know that it's very debilitating from the little bit I read and keeps you from walking. What was it that brought you to please, please tell. You can find happiness despite never being able to escape the pain. Well, I went through a really dark time with that I've had surgery 2011 and I needing another but I need another fusion in my neck. I have to dislocated discs in my neck, one on each end of the Ford fusion and I'm putting it off and still I can no longer handle the headache and neck pain for a long time.

I was really angry.

I was angry with Gaudio. How can you allow somebody to stuff urges. Now I was diagnosed three weeks after I married my husband and I was told I had a year to live and that I would not survive surgery as though anger and frustration be here at a 14-year-old on my been a single mother to his whole life.

I really felt like I had just lost everything.

I was only 34 years old and so, long time.

I was angry that my husband how like he is he is that person that just stood next to me.

He bade me when I couldn't save the my food showered me wash my hair would shave my legs.

He did everything for me you help me get dressed he would put shoes on me because I didn't have the ability to do that and then it was just now I spent two weeks in a rehab hospital in 2016 and I found myself pushing to get out of that wheelchair, but I just was not ready to spend my life in a wheelchair so that's kind of I think where I really started to push like I'm going to get out of the wheelchair. I'm going to walk again.

I will be able to feed myself again.

These things are going to happen and they did, and I don't have to inflation have function.

So my limbs don't have much sensation I keep my eyes on what I'm doing and unable to do much whatever I want and that gives me hope that there's a reason all of that came back to me and that's why I get up and do what I'm doing every day compensate.

Despite his disability into the darkness. In 2011 year sentence. Miracles do happen and if you have the will to sky's.

To not give up. If you have someone that you love and wanting you love yourself unconditionally alone can be a driving force parent wonderful and my husband and kids have helped a lot of guilt on you because I felt like I was a burden. I felt worthless when I was in a wheelchair like all I can do is sit here and watch my family run the household.

I had run and so you know their willingness to help in their property. My mom would bring the gift of just little thing that would help me do the small things people don't think about needing help with, you know, talk to me and I wish I could do things so doesn't think our life is bad. Community will thank you. Now you know there was anything wrong.

I really do some showing he is kind he really is. I have overcome that my anger with him and I think it could be. I was so angry that you think are good now you know I have a wonderful husband and my son moved out in December. You know, ready to start his adult life. That was difficult. You know, and I have three stepdaughters and the good we don't yeah I don't I try not to dwell on all of that because I know I can be back there tomorrow. I know that tomorrow I can wake up and I will be able to use my leg. I know these things can happen.

So every day it is you believe God husband into your life that you convince all these years you have people to function, hospital and dental. Many things survived a few things and from sexual abuse to physical abuse and emotional abuse to face domestic to four times custody battles to miscarriages.

I think I can do a lot of things that I always I can think of anything I had. I always blame the devil and LIKE me going because like I yeah for those that are just coming in tiny capital in this picture is best for me.

Welcome back to the show.

I need to have a picture if this is a percent were talking about how to overcome chronic joint special guest Monica and I see that we have another call coming in will get that many Monica ask you if you have I want to share with our listeners. You're telling do you have handy the point that you will darkened love because I do you feel all right connection area okay.strolling along George Street right seeking freedom of his captive curse. Her steely gray eyes moistened with tears shown being Street aligned to the destination. She was given no choice. Rain forced abandonment on the streets, isolating her journey watchful of every step. The immense Catholic clock face, but it's familiar grinding cogs metal on metal machinery at one time there safe coping the pulse of each take and think with every breath sitting in her heart for step to status and parcel covering hoping for intactness now happy to find that beautiful I think that is anything I need.

I know that this was so go ahead and answer the call. I believe it's Caleb going from Utah hello Kelly yeah you're on a area on the care and you are talking with Monica. She has a very very difficult situation where she has a condition that she has to deal with every day. What is it that you want to share with all original mount) well for you. Water were all but one resort and only thing correctly causing right now that what we both can go there before and we hear the heart because God I know my own personal bird so I can hear something more than an eye you and your new team prepping what I can't take and I you because I know other work, child amazing mentioned, I wanted to ask you how one point you are angry God. I know people that I even have my own issues with the Catholic religion so that tell us what was your quality of life when you didn't have the comfort of God. When you are angry with God compared to when you realized it wasn't God's fault that he was there for you.

My quality of life not not a happy one.

I created all the time. Everything made me angry, scared all the time together negative thoughts were there and I'm generally a very positive person.

I like to look on the bright side and like the color I've accepted my pain. I have fibromyalgia to accept 10 diseases have been diagnosed with and get the nerve pain and sometimes taking a shower is extremely painful on my skin. When can hurt but I take some very strong medication but I've accepted one thought once I found that I could express what was happening and I keep my pain level at a certain level I can function still hurt, function and my life is happier and I'm back to the positive thought they had a bad day, but more often than not just finding out accepted this.

This is what I've been given no cure, no treatment. They don't know what to do with the disease they only treat the symptoms so you just have to find acceptance of this medical condition having the space can also make you depressed. Getting angry helpers and feeling and feeling like you no one if you don't want to get out of bed feeling like you don't hear about anything and I got on us – and yes, I've been through that and it is hard.

Depression is no joke that is that. And debilitating illness a minute.

It really is and it has to be treated. I am not ashamed to say that I do take medication for depression. Also, it just you know it just I'm not ashamed of it. I take it and it helped me where I want to be great care of yourself. You and Kelly, how are you people to get you.

I think that you deal with depression as well and what was what was given one a functional team under market coming from because I think because grandma I have truly got will not give me what I handle the garden next… Anything you can think you Kelly that you this is Amy P. Listening to the church. Listeners feel for you: tell us your story. Talk to us, we'd love to hear from you. We come back we discuss this really doesn't give us anything we can handle with stuff we God, God will help.

Life can bring many difficult situations domestic violence addiction is poverty, but even sexual abuse by your loved ones. The issue is not stay there, but to overcome all obstacles been shouldered with the love of God, your husband and your family.

You can succeed. Love is the answer. God is the key word reveals baby combos life, a warrior who didn't give up and achieve the dream of her life. You can get to know more about her at her story on God is the key word.com or buying her book on Amazon.com back. Thanks for joining us here, I see that he had found out from around like coming today were talking any suffering and wasted you to live your family hello Monica Geer I thank you for calling on their warm.no go….Not help people realize that getting everyone and how to build up machining knitting that you need help or that you see because I think it's great care of ourselves and we able to come to terms that you can only work on something if accepting if you need it.

If you come to terms and I mean it's amazing… You despite the fact that you go to this you help others and I don't believe there's anybody better that can help others and someone who's going to do it themselves and speaking to Monica, who had different medical conditions and it's really sad because I work in the medical field and I have to do medical histories and I see myself having pages and pages of medical conditions, and I don't even know people walking to the office with a smile on their face with a good attitude.

I think it's amazing the human spirit that they can go to so much and it went to so much because okay we can suffer from mental illness. Nothing physically wrong with me right big deal. There's people that really tough like Kelly and Monica deal with pain. Everything and that the only better way. Can't do anything about the physical pain. You can't do anything about your condition that you can try to help you mental state of mind.

You can try get a better perspective try to live a happy life. Try to feel better for me. I had to had gotten my life to pray for me to think that he loved to have faith that he would provide for me. I take a positive attitude and I had to waste right and I was targeted Fonda network, though well you you you need to go get help. Don't help them get better. About so many people think that going to help. One important thing like America help out your online your brain, go get help.

You always are you okay help depression is very difficult and people say that God does not give us anything we cannot handle, and I questioned this one and I said if God doesn't give us anything we can handle. Why is this site wiser, depression.

Okay, so they said it was very simple.

God does not give us anything we can handle as long as we have in our lives when we don't have in our lives.

We leave ourselves open to depression ourselves open to maybe hurting and hurting ourselves, but when you have God in your life you're better able to get to with it and I understand that mental illness is just as bad as physical illness can't really say somebody something more than somebody else doesn't matter what they have that depression can be suffering a lot even though they have something small and someone like Monica rents can suffer very little. What is your help though there are you don't have God in your life you opening up people have mental health, untreated mental health in American culture with all people, not all people were getting help will point feeling bad about your job, but there are people out here waiting for the show to show people that say my wrong and a friend has bipolar I know that these things are very difficult and it's wonderful that there's people like you Fonda that are even a help so many resources.

I remember there was a time that I was suicidal that I could kill myself. And it's not that I didn't believe in God is not taking my life. I just believe I didn't believe God loves me enough. I believe that I was meant to suffer believe there was no reason for my life. All work will help problem. Life you don't have professional community on work Monica 20 support programs anything that would help you think that I'm Fonda mentioning well. I reached out a little differently.

I went to my primary care doctor and for me.

My mood was very deep and changed. I didn't feel suicidal but I still felt completely worthless. I didn't feel like I needed to have a purpose and I didn't know what it was anymore. So I contacted my primary care Dr. like in the very beginning as my diagnosis, I reached out to foundation for strangling Delia the one and I actually volunteered for a while. I ran the kids club for ASAP.

American mycelia and Chiari alliance project and working with them and seeing you know because you can be born with this disease. Or you can get it through spinal cord, and they believe mine was probably through courtroom. In my early 20s.how to apply 14 years before diagnosed, which is why my whole spine was pretty well involved.

It is now in my brainstem you know that because other issues that you you you talk you see kids dealing with I at least didn't have pain in my childhood. I can't imagine a child filling my open my eyes is probably very much agree with part that were able to provide listeners a feeling of being get through whatever they're going through something like I mentioned there's a lot of support in place they can call you had your method of getting by what you what you went through. I had my method was medication visiting speaking in therapy. Trust me, my psychiatrist found out what happened to anyone about my book but and that's you know I did my my therapy and and that's I like to invite people because I don't know what it's for everyone.

If you want different and you know everyone, I don't know what I wanted to ask her what works for you.

Maybe she'll get back important out there.

You know what name was was no different note, story, or any number. Thanks for getting in cattle and the care when I say 1 PM Eastern and we have Monica and Rhonda and that Fonda wanted to thank you so much for being very good points and I realize there's people who care, and please do stay in touch. Monica wanted to ask you T I am very very fine blog I think it's anything you believe that your block is helping others that it that they read about your life and hope and think she might explain helping yourself and others at the same time that I think it is very therapeutic.

I this is actually my third blog I started one shortly after my diagnosis and I talked about the disease. I didn't have anybody to reach out to. There are no specialist really you know in the area live in Kansas that is the specialist for this diseases is there no on the coast you know Maryland you're in California they're not here in the Midwest and I didn't know who to reach out to. So I started this blog I started gathering information and I started gathering list of doctors and people were contacting me. I was just diagnosed and I found your blog whom I go to what I do. My doctor said this is the is what you did, you and so is a sharing and then about every six months.

I was having a major spine surgery and it became hard to keep up with the blog click close it down this blog more like me combined my passionate writing my book and the disease try to help everybody I get comment credit who thank you for explaining it without so much medical jargon.

Thank you for being real about it. You know the medical field 15 years before I got sick and this meditation but also you know you don't go online to read somebody's experience in the field understand everything I do get a lot of compliments on not being too technical and helping him and you know and then it's kind of a release if they can read about other things and see that there my life is of the disease but that's not who I am. This is over here is who I am. I have those without Monica is because you will see sometimes he can get out feeling well. I start my day with prayer things become. And it's important to just continue on not because you are here for reason and I don't understand why some people suffer do some things happen in my gut saying we would go to tribulation that the world and she's nice to things that help us people like hell. People like you in writing things down at some point seek just the beauty when you write it down only helping others whenever my memoir. I refused it was helping them difficult for me to private person writing it down not only helps others but it helps yourself. It helps you to come to terms with and also speaking about in the beauty about writing it down.

Speaking vignetting to write not only sipping into like to give hope to others to help others to know that they're not alone select education to inform others to make them aware.

Whether it's a medical condition or physical condition or abuse just to make them aware and the more that you hear about something about something and want this education to better handle. I could not agree with that were there for me to learn about the disease I learned from Dr. Google you know there was nobody leaning to me what happened.

My body and explained me that affect my muscles, my nerve my function and there's not an organ in the body. It can't go to.

It is in my bladder you know there's just and everybody suffers with it differently so if we all share our experiences and I do belong to the court by a a lot of support groups. They do, and this one for strangling my earlier you get on there you share your stories. You can advise the doctors there connected to the word which is enough national organization required their stuff out there. You discovered reach out to find yes you have an amazing story. Are you thinking of writing a novel depicted around a little bit.

I usually release my motion through poetry. I do have a patriotic type for my poetry and I share it there and sometimes very personal, but that's really helpful to me to get feedback. Nice to know he touched me and I enjoyed this know I understand where you're coming from the health everybody writing a book, but not about my life so some quite well. Therapeutic, but that's very important because we have our phase. We know God is here and we feel his love in different ways. Not just physically but physically here physically for each other and for each other as partners in life. Like go to and while using husband where in love. I got your you know you have a lot to be thankful for having an and I know that I would. I have never had a partner in my life that would've done for me with my husband grateful isn't even a word doesn't even come close to the love and respect I have some touchable home alone.

This is when even be doing this as challenging as it is that it's need to me. It wasn't that I wasn't so grateful it wasn't that I feel like it's the least I can do in return for the way that God has blessed and if I ever believed that a person forgot to love me, but I was destined to suffer. I was so wrong was deceiving me. Truth is left to me in getting my husband, my kids asked me for the most beautiful David.

If so, there's still sleep with some nice some level, my friends, pavement replacement for anyone and there's just no known life any good to me that I even get therapy from song to song that really hits home but has to do with what I'm doing.

I get so happy and believe it or not something I dedicate this monster got some things and I think that is dedicating the fountain is something to be like that influences English to sing some songs to help keep today's society there teaming with either. Now you know it or not being there for each other more than we know this is the way this is just a platform which we can do it. I reach over the world.

There is hope.

Okay.kids tell your story because you don't know you might be helping Leslie helped me because I always thought the press that have it worse, but it's not that easy answer from somebody and it puts things in perspective.

I know I have no reason to ever complain ever again and my my thoughts exactly the thing. There are people that have why do and I know that and I remember that I think about them and then I also I'm not somebody who compares what I'm going to do what somebody else going through.

Like your pain is your pain is legitimate and for you and then somebody else's is the same that bad for them what they're going through is bad to make it necessarily worse.

It that's their situation and this is my situation so you know why I try to keep it separate from my heart. I know it's not as much as you but it is hurting is true you do have legitimate concerns and it doesn't have to hurt more than me to be something to complain about.

I don't feel your pain and you don't feel my pain that yours have a right because something is suffering that we shall think you Monica for being with you where you are an inspiration to the best example of inspiration that anyone reading. Thank you and God bless him you are you thinking things are for more information on Monica's work can be found someone. What changed on tomorrow's something state, little better yesterday. Small's last farewell next